Palliative care provides an added layer of support for children and adolescents living with serious illness. It helps ensure that your goals as a family are at the heart of your child’s care. Palliative care can help to ease pain and other upsetting symptoms resulting from a condition or treatment.
To be eligible, a child must:
Be under age 21
Have active Vermont Medicaid
Be living with a serious life-limiting or life-threatening illness or condition
The Pediatric Palliative Care Program is made up of five main services available to a child and family:
Care Coordination – Someone to help make, and put into place, a family-centered care plan
Family/Caregiver Training – Training for family members and caregivers about how to provide care to their child or youth
Expressive Therapies – Certified art, music, play, dance/movement therapists or child life specialist to help the child and family members process their emotions
Skilled Respite – Short term relief for caregiver relatives provided by a nurse based on medical need
Family Grief Support/Bereavement Counseling – Counseling for the family to help during the child’s life and for up to six months after the death of the child
- Health care provider makes a referral
- Anyone can request the Pediatric Palliative Care Program for a child, but the medical provider must be the one to refer.
- Referrals can be made at any age or any stage of the illness. Ideally, referrals are made around the time of diagnosis so families have the supports available as early as possible.
- Pediatric Palliative Care Program services are provided by specially-trained teams at Medicaid-contracted home health agencies and Visiting Nurse Associations around the state. These teams may include nurses, social workers and therapists.
- Families and caregivers work with the home health agencies and Visiting Nurse Associations to set up and access the supports that best meet their child's needs. As their needs change, their care plan, and the supports they choose, can change too.
Provider Information Sheet Information sheet on who is eligible, services provided, and how to make a referral.
Pediatric Palliative Care Referral Form Needed to refer your patient to pediatric palliative care.
Pediatric Palliative Care Approach to Pain and Symptom Management Pocket-guide to symptom management in children from Dana Farber Cancer Institute/Boston Children's Hospital.
Family Information Sheet Information on eligibility, services and enrollment for pediatric palliative care.
Resources for Families Resources to support families through their palliative care journey.
Books for Children, Parents and Providers Recommended reading to help children and adults through grief.
Introduction to the Pediatric Palliative Care Program
Pediatric Palliative Care Program Provider Manual Guide through the requirements for participation in the PPCP and ongoing delivery of services required by the Centers for Medicare and Medicaid Services in the approved waiver. Includes forms such as Monthly Service Reporting Form, the Reimbursement Rates, a template Interdisciplinary Team Meeting Note, an Intake and Needs Assessment, a Plan of Care, a Care Conference Meeting Note, Pediatric Palliative Care Bereavement Log, an Expressive Therapy Referral Form, and the Additional Services Request Form
Children with Special Health Needs
Vermont Department of Health
108 Cherry Street, PO Box 70
Burlington, VT 05402
Tel: 800-660-4427 or 802-863-7338